2024 Expert Speaker Faculty

Alayna Tress , Patient Recruitment for Rare Diseases Summit 2024

Alayna Tress

Director, Patient Advocacy

PepGen

Amanda Rohrig , , Patient Recruitment for Rare Diseases Summit 2024

Amanda Rohrig (Virtual)

Director, Patient Advocacy

BridgeBio

Angela Hecyk Patient Recruitment in Rare Disease Trials Summit 2024

Angela Hecyk

Director, Clinical Operations

OMass Therapeutics

Belle Estee Dante

Patient Recruitment & Retention Global Lead, Rare Disease, Rare Blood Disorders, Neurology

Sanofi

Christine Brown , Patient Recruitment for Rare Diseases Summit 2024

Christine Brown

Associate Director, Patient Partnerships

Astellas Pharma

Dennis Akkaya Patient Recruitment for Rare Disease Trials Summit 2024

Dennis Akkaya

Chief Commercial Officer

myTomorrows

Ella Balasa , Patient Recruitment for Rare Diseases Summit 2024

Ella Balasa (Virtual)

Patient Advocacy & Engagement Consultant

Independent

Heidi Floyd , Patient Recruitment for Rare Diseases Summit 2024

Heidi Floyd

Patient Advocate

The Pink Fund

Ify Osunkwo , Patient Recruitment for Rare Diseases Summit 2024

Ify Osunkwo

Chief Patient Officer, Rare Disease

Novo Nordisk

Kelli Wright , Patient Recruitment for Rare Diseases Summit 2024

Kelli Wright

Director, Patient Advocacy

Day One Biopharmaceuticals

Kristin Faber Patient Recruitment in Rare Disease Trials Summit

Kristin Faber

Vice President, Global Site Solutions

Continuum Clinical

Lauren Powell , Patient Recruitment for Rare Diseases Summit 2024

Lauren Powell

Head, Health Equity

Biogen

Lindsay Marjoram

Director of Research

Barth Syndrome Foundation Inc

Lori Correia , Patient Recruitment for Rare Diseases Summit 2024

Lori Correia

Patient Advocacy Consultant

Tenaya Therapeutics

Mackenzie McKinney Patient Recruitment for Rare Disease Trials Summit 2024

Mackenzie McKinney

Associate Director, Patient Centricity

Moderna

Madeline Carrier Patient Recruitment in Rare Disease Trials Summit 2024

Madeleine Carrier

Senior Patient Navigator

myTomorrows

Monique Mulkern , Patient Recruitment for Rare Diseases Summit 2024

Monique Mulkern

Head, Global Patient Insights & Solutions

Alexion Pharmaceuticals

Raymona Lawrence Patient Recruitment for Rare Disease Trials Summit 2024

Raymona Lawrence

Professor-Community Health Behavior and Education

Georgia Southern University

Ross Heiney , Patient Recruitment for Rare Diseases Summit 2024

Ross Heiney

Ultra-Rare Patient Access & Field Reimbursement

Reata Pharmaceuticals

Samantha Botts

Global Recruitment & Retention Lead

Sanofi

Tara Hastings , Patient Recruitment for Rare Diseases Summit 2024

Tara Hastings

Global Patient Engagement Lead

Sanofi

Todd McGrath Patient Recruitment for Rare Disease Trials Summit

Todd McGrath

Chief Operating Officer

Medical Research Network

2024 EVENT GUIDE
WORKSHOP DAY