Enhance Awareness of Trials, Support Enrolment of Underrepresented Patient Populations & Achieve Recruitment & Retention Targets

Welcome to the Patient Recruitment for Rare Disease Trials Summit

In the face of unprecedented cost-per-patient expenses, the FDA’s recent focus on rare disease, and a myriad of options for identifying, engaging, screening, and retaining eligible patients, it is essential to prioritize patient-centric recruitment strategies. As the landscape of rare disease research undergoes a transformative shift, by placing the patient at the heart of recruitment efforts, we can effectively address the significant unmet medical needs in rare diseases and streamline the pathway to innovative treatments.

The Patient Recruitment for Rare Disease Trials Summit serves as the premier event for experts in patient recruitment, advocacy and clinical operations to unite in order to navigate cost-efficient, patient centric recruitment to expedite enrolment in rare disease trials. Don't miss the chance to collaborate with industry experts working towards a common goal: ensuring that patients with rare diseases have access to life-changing therapies.

World-Class Speaker Faculty Includes:

Companies on the Program Include:

Astellas , Patient Recruitment for Rare Diseases Summit 2024
Novo Nordsik , Patient Recruitment for Rare Diseases Summit 2024
Biogen , Patient Recruitment for Rare Diseases Summit 2024
Sanofi , Patient Recruitment for Rare Diseases Summit 2024
BioMarin Pharmaceuticals , Patient Recruitment for Rare Diseases Summit 2024
Alexion Pharmaceuticals , Patient Recruitment for Rare Diseases Summit 2024
PepGen , Patient Recruitment for Rare Diseases Summit 2024
National Coalition for Cancer Survivorship , Patient Recruitment for Rare Diseases Summit 2024
Celldex Therapeutics , Patient Recruitment for Rare Diseases Summit 2024
BridgeBio , Patient Recruitment for Rare Diseases Summit 2024
Ipsen , Patient Recruitment for Rare Diseases Summit 2024
Rocket Pharmaceuticals , Patient Recruitment for Rare Diseases Summit 2024
Day One Biopharmaceuticals , Patient Recruitment for Rare Diseases Summit 2024
Jazz Pharmaceuticals , Patient Recruitment for Rare Diseases Summit 2024
Travere Therapeutics , Patient Recruitment for Rare Diseases Summit 2024
Reata Pharmaceuticals , Patient Recruitment for Rare Diseases Summit 2024

Partners:

What the industry thinks about other events in our Patient Access & Inclusion Series:

“It was valuable to network with the community to lead the way in demonstrating value of patient engagement to all stakeholders for further systematization across healthcare systems” Novartis

“An extremely well-run meeting. The best aspect was the spirit of collaboration and sharing among the very experienced participants and speakers” Bridge Biosciences

“The collaborative and honest space was refreshing. No one did a commercial for their company. People wanted to learn and ask their peers questions. It’s a rare opportunity to put people together who are working in this nuanced space” Bayer

“It’s something new and I think it’s something we’re all looking for in terms of how we really know we’re having an impact on patients that we’re working with” Novartis

View Upcoming Events in the Series Here