Tricha Shivas

Company: Foundation for Sarcoidosis Research

Job title: Chief of Staff and Strategy

Bio:

Tricha Shivas joined the Foundation for Sarcoidosis Research (FSR) in December of 2020 as the Chief of Staff and Strategy. Tricha has 20 years of non-profit leadership experience dedicated to improving the lives of those with complex chronic illness and rare diseases. Throughout her career, she has built comprehensive patient engagement and awareness programming, developed robust diversity, inclusion, and equity programming, worked with the NIH, FDA, academic researchers, and industry to expand therapeutic pipelines and to increase patient centricity in drug development. Tricha has played a pivotal role in FSR’s Ignore No More Campaign focused on awareness and increased clinical trial diversity.

Tricha received her bachelors in American Studies from Albright College and her Masters of Bioethics from University of Pennsylvania. She currently serves on Drexel University’s Health Administration Department Advisory Council is on Global Skin’s Rare Disease Steering Committee and past co-chair the NIAMS Coalition.

Seminars:

Partnering with Patients: Co-Creating Clinical Trials to Shape Smarter Trial 11:15 am

Engaging patients and caregivers from the outset to co-develop protocols, endpoints, and eligibility criteria Integrating patient insights to drive more inclusive designs, increase trial relevance, and boost enrolment Avoiding misalignment by validating assumptions early and embedding the patient experience in study planningRead more

day: Day Two