About Event
Your Comprehensive Guide to Patient Recruitment for Rare Disease Trials Summit
Recruiting patients for rare disease trials is akin to finding a needle in a haystack, with challenges such as geographical dispersion, low awareness, and limited eligible patient pools. With this in mind, it comes as no surprise that more than 80% of clinical trials in the U.S fail to meet their patient enrolment times. The Patient Recruitment for Rare Disease Trials Summit addressed these obstacles head-on by exploring innovative strategies to identify and engage eligible participants more efficiently.
Bursting with real-world evidence and implementable case studies, this platform offered a unique exploration of both the hottest topics and industry bottlenecks, including:
EXPLORE
actionable insights for enhancing DE&I with Biogen to ensure everyone, regardless of background, has the opportunity to benefit from clinical research
GAIN
knowledge on how patient feedback can be gathered, and then integrated back into trial design as they progress with Day One Biopharmaceuticals
NAVIGATE
best practices when it comes to sharing sensitive, clinical trial data with patient organisations in order to build trusting, transparent relationships with Astellas Pharma
ENRICH
your understanding of ensuring fair patient reimbursement with Reata Pharmaceuticals without compromising limited trial budgets
Who Could You Have Met?
About Our Patient Access & Inclusion Series:
“It was wonderful to network with peers and share challenges and best practices; and develop relationships to connect for continued success, not only for us and our employers, but especially for the patients”
Decibel Therapeutics
“Great views and opinions, experienced speakers, diverse perspectives from patients and caregivers, advocacy groups and sponsors” Tenaya Therapeutics